Writing for GraceFull Parenting has been an interesting experience so far. Some of the things we share are very personal and bring up painful memories. There is good too, and we love to share the funny and the happy. However, my greatest lessons were learned during moments of pain, and sorrow. Writing about these moments is painful because of the emotions they expose. Like the time Ellie spent 10 days in pediatric ICU. That was tough, but we learned a lot. And I wouldn’t trade the lessons away. (Story for another day.)
Parenting a child with special needs isn’t a short term issue. It isn’t a job loss, a wrecked car, or a bad grade in school. Those hit us hard, but are over relatively quickly. The illnesses our children live with are a life-long issue for them. My daughter may never move out. My son will always have autism. Sam will deal with a poor immune system for the rest of his life. As we watch our children struggle with these issues, sometimes it breaks my heart. I wish I could take away their disabilities, but I can’t.
So as I share our story with you, there are times I can’t write. I can’t express the pain, the heartache, or the private moments that I ponder in my heart. It is difficult to express that pain in words. And sometimes, I don’t want to.
Thank you for taking this journey with us. Please excuse our silence when things are difficult here, and thank you for being supportive as we share a bit of our lives with you.